There ECHS1 community is made up by several foundations and families all around the World, supporting research and providing guidance for the parents of affected children.
> In Romania, you can contact Asociatia Copiilor cu Boli Mitocondriale.
> If you live in Australia, you can reach out to Archie’s Embrace Charity The parents of Archie organized a Gofundme to raise funds for the ECHS1 preclinical trial. You can donate for the trial here: https://www.gofundme.com/f/archies-embrace-cure-echs1d
> In UK, the parents of 2 years old Rome started a Gofundme in the UK to raise money for the ECHS1 preclinical trial. You can donate with your debit or credit card from all around the world. Click here for details: https://www.gofundme.com/f/get-rome-to-texas
> 2 years old Korra`s family started a fundraiser in the USA for supporting the ECHS1 preclinical trial. You can donate on their Gofundme platform here: https://www.gofundme.com/f/find-a-cure-for-echs1